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Light at the end of the tunnel?

The pathology of the colon of the came back and based on the level of inflammation shown, there were no medical therapies left that could have worked to repair the damage to the colon. This did reassure us that we did make the right decision in removal of the majority of his colon.  

Garrett continues to make small improvements. He played with Legos and was sitting up most of today. Garrett did get another 103 fever today but it subsided with Tylenol. 


A physical therapist worked with Garrett today. He was VERY resistant, but later on he walked across the hallway to the playroom to pick out a toy. It was the farthest he’s walked in two weeks- literal and figurative babysteps.


Garrett ate a few bites of pizza from Gia Pronto, the restaurant across the street today- thanks Haddonfield Friends parents for the gift card from a previous hospitalization! He also ate a little bit of a pancake, the best tasting food from the CHOP cafeteria. The majority of his calories are still supplied through the central line. 


If Garrett can increase his mobility, there is an uptick in his caloric intake, and the fevers continue to decrease, we are hoping we can start to discuss a discharge plan. It is still too early to think about what day he might come home, but are hopeful it might be by next week.

Comments

  1. UnknownJune 27, 2020 at 2:25 PM

    We are praying for him every day and love seeing his beautiful face💞 Hopefully, the light will shine very soon for Garrett. Just shared this update with our family

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