Skip to main content

Posts

Showing posts with the label Garrett

Looking better...

We are now six days post surgery, and Garrett is showing some signs of improvement. His skin is beginning to clear up and his fevers are occuring less frequently. Importantly, his belly pain is from the surgery alone, not IBD and an inflamed colon. Garrett's personality is slowly starting to coming back out, and he's building LEGO and playing with his iPad too. He's also been much more amenable to dealing with shots, meds and applying creams. However, having been sick and pretty immobile for the past few months, Garrett tires really easy and is extremely thin. It will take awhile for him to regain the energy and muscle tone he had before. We're not sure when he'll come home yet, but I feel a lot better about his health than I did three days ago. The things his team will be looking at closely in order to determine when he's ready for release are, his desire to eat foods again, whether he keeps himself hydrated, and if he is starting to be more mobile.  We are hop...

It's a medical fact...Garrett is a BADAS

Dermatology just let us know they received preliminary  findings from yesterday's biopsy. In additional to IBD, uveitis, and psoriasis , they believe  Garrett has  Bowel-associated dermatosis–arthritis syndrome  ( BADAS ), an uncommon dermatological   condition  that those with IBD and other medical   conditions  can get. It can cause fatigue, joint pain, fever and painful pustule  eruptions on the skin, all of which he has right now.  He will be treated with topical steroids  over the weekend to try to keep him comfortable and a group meeting with several specialties, including dermatology, GI, rheu matology  and neuro- ophthalmology  will occur early next week to chart the best treatment course for all his underlying conditions. We hope that removing the colon will remove the main source of the inflammation  and get him on a better path overall.  Garrett has fevers and abdominal pain, not uncommon after surgery...