We are now six days post surgery, and Garrett is showing some signs of improvement. His skin is beginning to clear up and his fevers are occuring less frequently. Importantly, his belly pain is from the surgery alone, not IBD and an inflamed colon.
Garrett's personality is slowly starting to coming back out, and he's building LEGO and playing with his iPad too. He's also been much more amenable to dealing with shots, meds and applying creams.
However, having been sick and pretty immobile for the past few months, Garrett tires really easy and is extremely thin. It will take awhile for him to regain the energy and muscle tone he had before.
We're not sure when he'll come home yet, but I feel a lot better about his health than I did three days ago. The things his team will be looking at closely in order to determine when he's ready for release are, his desire to eat foods again, whether he keeps himself hydrated, and if he is starting to be more mobile.
We are hopeful with the signs we are seeing. Garrett went on two wheelchair "walks" today, one to the cafeteria for breakfast with me, and one to an outdoor garden with Childlife.
On the food front, Garrett nibbled on a pancake and some bacon this morning. The food at CHOP is not great and it's always a challenge to find something he'll eat. However, thanks to Uber Eats (and the Uber Eats gift cards from friends), when Garrett asked for a McDonald's happy meal tonight, I had one delivered. He had two nuggets and some fries!
So, overall progress!
Such good news! Keep it up, Garrett!
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