Garrett is getting discharged today!

Garrett is progressing well: he ate some pancakes this morning for breakfast and has been managing his pain with tylenol and motrin.

His surgeon is happy with that and has cleared him for discharge today, so we'll see how long all the paperwork takes and when he actually gets out the door.

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Ultrasound and ice cream

Yesterday, Garrett’s right arm and hand began to swell below his central line and there is a significant difference in size between the right and left side. I asked for an ultrasound. The ultrasound was very painful for Garrett. The sores on his body hurt to touch and he has quite a lot of large ones where the ultrasound probe had to be pressed. He screamed through most of the ultrasound prolonging the process. Garrett does have a small clot, but it is not fully occluded. Typically, an anticoagulant would be started, but in a post-op IBD patient, the protocol is not as straightforward. Hematology and surgery are meeting this morning to determine next steps. They want to save the central line in order to provide nutrition for Garrett, but need to determine the best course of action. In the interim, he is on pain medicine for his arm (in addition to his abdomen and skin) as the swelling in his hand has now become significant and very painful. He can’t close his hand without crying.

Garrett has left the building

After 17 days at CHOP, Garrett came home tonight. It was a very long stay with a lot of ups and downs, but he’s back with Mommy, Daddy and Gibson. Happy to be in his own bed again, Garrett quickly fell asleep tonight. More to come...

Garrett's Home!

Garrett is back home! Though tired, he wanted to try and catch the tail end of the school day at HFS. We thought it better that he just come home; he's already had some pizza and is relaxing in bed playing Roblox by himself. Gibson is not home from school yet, and all Garrett wants to do is play with his brother! Jill and I are happy that our house will be full again tonight. Thanks everyone for your thoughts and support this week!

Updates on Garrett

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